This section of the website is for patients who have been prescribed Bylvay▼ (odevixibat), their parents or other caregivers in the UK. Information for members of the general public can be found here.

This website has been commissioned by Ipsen UK and is intended for a UK audience.

▼This medicine is subject to additional monitoring. This will allow quick identification of new safety information. You can help by reporting any side effects you may get. Reporting of side effects. If you get any side effects, talk to your doctor, pharmacist or nurse. This includes any possible side effects not listed in the package leaflet. You can also report side effects directly via the Yellow Card Scheme at https://yellowcard.mhra.gov.uk/ or search for MHRA Yellow Card in Google Play or Apple App Store. Side effects should also be reported to Ipsen via email at pharmacovigilance.uk-ie@ipsen.com or phone 01753 627777. By reporting side effects, you can help provide more information on the safety of this medicine.

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PFIC patient guide

Progressive Familial Intrahepatic Cholestasis (PFIC) File
16 pages

This leaflet is a guide for patients, their parents or other caregiver on PFIC. The booklet provides and overview of the following: 

✓ PFIC 

✓ Management of PFIC 

✓ Symptoms of PFIC 

✓ Support for you and your family 

✓ Hope for the future

OX-UK-000048 | July 2025

PFIC patient guide
Explore more Progressive Familial Intrahepatic Cholestasis (PFIC) Patient Support

Explore more Progressive Familial Intrahepatic Cholestasis (PFIC) Patient Support

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To access relevant information about Progressive Familial Intrahepatic Cholestasis (PFIC), please confirm the following:

I am a UK Healthcare Professional

This section is for UK healthcare professionals only. Contains promotional information.

I am a UK Healthcare Professional

I am a patient

This section provides information to support patients that have been prescribed Bylvay▼ (odevixibat), their parents or other caregivers.

I am a patient

I am a member of the general public

This section is for members of the general public.

I am a member of the general public

▼This medicine is subject to additional monitoring. This will allow quick identification of new safety information. You can help by reporting any side effects you may get. Reporting of side effects. If you get any side effects, talk to your doctor, pharmacist or nurse. This includes any possible side effects not listed in the package leaflet. You can also report side effects directly via the Yellow Card Scheme at https://yellowcard.mhra.gov.uk/ or search for MHRA Yellow Card in Google Play or Apple App Store. Side effects should also be reported to Ipsen via email at pharmacovigilance.uk-ie@ipsen.com or phone 01753 627777. By reporting side effects, you can help provide more information on the safety of this medicine.